Information Resources
Children’s Brain Tumor Foundation
Information, support, and advocacy for patients and their families
Pediatric Brain Tumor Foundation
Information, news, support, advocacy, and resources for patients and their families
Childhood Brain Tumor Foundation
Information, support, and advocacy for patients and their families
Brain Tumor Survivor Late Effects Clinics
These clinics follow the Children’s Oncology Group (COG) long-term guidelines for survivors of childhood, adolescent, and young adult cancer. They address the medical, educational, and quality of life issues faced by brain tumor survivors.
Cerebellar Mutism
A symptom complex including decreased or absent speech, irritability, low muscle tone, unsteadiness and decreased coordination, and the inability to coordinate voluntary movements most commonly seen after surgery in the posterior fossa region of the brain.
Hydrocephalus: www.hydrocephalus.org or www.hydroassoc.org
Hydrocephalus is a condition characterized by an abnormal increase in the amount of fluid in the cerebral ventricles causing compression of the brain, destroying neural tissue.
Wish-Granting Resources
Bear Necessities
“Small miracle” program and $500 assistance
Make-A-Wish Foundation
Wish-granting organization for patients ages 2 ½-18
A Special Wish
Wish-granting organization for children and adolescents up to age 20
Financial Resources
Cancer Care
Financial assistance with treatment-related expenses
National Children’s Cancer Society
Information and direct financial assistance for patients and their families